In an effort to advance cancer data sharing and improve the quality and coordination of patient care, three of the nation’s leading health and technology organizations have established a core set of data elements and recommended technical specifications (the Minimal Common Oncology Data Elements, or “mCODE”) that are essential for capturing and reporting the characteristics, treatments, and outcomes of every cancer patient and should be contained in each patient’s electronic health record (EHR). The mCODE™ initiative, a collaboration between ASCO®, its wholly owned nonprofit subsidiary CancerLinQ LLC, the MITRE Corporation, and the Alliance for Clinical Trials in Oncology Foundation (Alliance Foundation), released the initial set of common cancer data standards and specifications today at ASCO’s 2019 Annual Meeting in Chicago and published them online at mCODEinitiative.org.
ASCO in Action regularly provides the latest news and analysis related to cancer policy news; see the following online articles. These updates provide snapshots of ASCO’s ongoing advocacy efforts, as well as opportunities for ASCO members and guests to take action on critical issues affecting the cancer community.
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ASCO has highlighted the concerns surrounding the persistent lack of interoperability of electronic medical records (EMRs) and the challenges it poses to cancer care to the Senate Health, Education, Labor & Pensions (HELP) Committee. The Society recently submitted a letter from President Monica M. Bertagnolli, MD, FACS, FASCO to Committee Chairman Lamar Alexander (TN) and Ranking Member Patty Murray (WA), in response to the March 26, 2019 hearing focused on “Implementing the 21st Century Cures Act: Making Electronic Health Information Available to Patients and Providers.”
On February 11, the Office of the National Coordinator for Health IT (ONC) released its long-anticipated proposed rule on information blocking, interoperability, and the Health IT Certification program.
ASCO’s first draft of its data specification of the Minimal Common Oncology Data Elements (mCODE™) project is available and open for comment through February 19.