Childhood Cancer Policy Priorities in Focus on Capitol Hill

April 2, 2019

ASCO joined the Alliance for Childhood Cancer on Capitol Hill for the 8th Annual Childhood Cancer Action Day, where advocates met directly with Members of Congress and their staff about cancer policy priorities related to pediatric cancer.

During the Action Day, advocates urged Members of Congress to:

  1. Increase funding for the National Institutes of Health (NIH) and the National Cancer Institute (NCI). Advocates thanked Members of Congress for increasing funding for the NIH and NCI in Fiscal Year (FY) 2019 and urged them to continue their support for research funding in FY 2020.
  2. Ensure full funding for the Childhood Cancer STAR Act. The STAR Act, which was passed late last year, identifies opportunities to expand research on childhood cancer and therapeutics to treat children with cancer and enhances research on the late effects of childhood cancer and increase efforts to improve quality of life for survivors.
  3. Co-sponsor the Palliative Care and Hospice Education and Training Act (PCHETA). The bill would increase research funding and establish education and training programs specifically for palliative care.

NCI Director Dr. Ned Sharpless addressed the group of advocates and applauded them for their work on behalf of children with cancer. Dr. Sharpless shared details about NCI’s proposed pediatric cancer data project. Former President of ASCO and Co-Chair of the Alliance for Childhood Cancer, Michael Link, MD, FRCPCH, FASCO, also spoke to advocates during the Action Day recognizing the great accomplishments of the last year, including passage of the STAR Act.

See images and updates from advocates participating in the Childhood Cancer Action Day on Twitter at #FightCancerForKids.

For more information on childhood cancer for patients and families, visit Cancer.Net's Childhood Cancer Guide.

Stay updated on cancer policy activity by visiting ASCO in Action.