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Considerations in Disclosing Study Results to Research Participants


Chair(s): Conrad Fernandez, MD; Elaine Morgan, MD


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PRESENTATON TITLE SPEAKER/ROLE Basic Player Enhanced Player
Welcome and Introductions
Conrad Fernandez, MD
Co-Chair
Video & Slides Play
Welcome and Introductions
Elaine Morgan, MD
Co-Chair
Video & Slides Slides Play
Normative and Philosophical Considerations
Conrad Fernandez, MD
Speaker
Video & Slides Slides Play
Logistics of Returning Summary Results
Ann Partridge, MD
Speaker
Video & Slides Slides Play
Returning Individual Results from Correlative Biology Studies
Vardit Ravitsky, PhD
Speaker
Video & Slides Slides Play
Overview of Patient/Parent Perspective
Benjamin Wilfond, MD
Moderator
Patient/Parent Panel Discussion
Joan Darling, PhD
Panelist
Alison Darling
Panelist
Missy Layfield
Panelist
Joel Layfield
Panelist
Donna Anderson
Panelist
Video & Slides Play
Closing Remarks
Elaine Morgan, MD
Co-Chair
Video & Slides Play




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